Parents, how can you live with an Asperger's/ADHD child without loosing your!


Question: My 12year old son has both high-end spectrum Asperger's as well as ADHD, whcih he is on medicine for. He cannot relate socially and no matter howmuch therapy and counseling he has, he has no motivation to change his behaviors. It is draining as well as frustrating. I am not looking for medical advice or advice from well-meaing people with no children going throught his. I am looking for parents in similar situations, please, who can give a frazzled mother some support and understanding. thank you.


Answers: My 12year old son has both high-end spectrum Asperger's as well as ADHD, whcih he is on medicine for. He cannot relate socially and no matter howmuch therapy and counseling he has, he has no motivation to change his behaviors. It is draining as well as frustrating. I am not looking for medical advice or advice from well-meaing people with no children going throught his. I am looking for parents in similar situations, please, who can give a frazzled mother some support and understanding. thank you.

As another frazzled mom with a 12 yr old son who has gotten the same diagnoses, had no improvement with therapy and is unmotivated to change (he is extremely defiant and vehemently denies reality whenever it is not what he wants it to be) I can definitely relate! It is so difficult to deal with 24/7...if there is any way you can get some time for yourself, do it. Even if it is just half an hour once a day. My son is with his Dad part of the time and I have no idea how I would survive if he wasn't. I don't think I could. It is so overwhelming. The psychiatrist has brought up the idea of respite care now and then...which gives parents a break...even if it is just a few hours a week. (I'm not sure exactly how it works).

There are times when I don't think I can handle another second. On top of the stress and exhaustion, I am so worried about him. He is also dx'ed with a mood disorder and I am terrified that he will hurt himself because he is so unhappy. No matter what I do, I can't figure out how to change things.

I just found out, after years of having the diagnoses, technically, according to the DSM-IV-TR, he can not have the dx of Asperger's and ADHD at the same time. I think the criteria for Asperger's excludes a dx of ADHD...but it may be the other way around. I can't find the paper the dr gave me (just looked) and really, the labels are not as important as the symptoms. But I couldn't believe it...nobody ever told me that and I don't recall reading it (and I read about this a lot)...not to mention so many disorders overlap each other and show up together anyway.
Feel free to send me an email!

Also, your situation matched mine well. Report It


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  • I would would look into local support groups for parents of kids with adhd. There are so many groups out there for people with disorders and their families. I feel for you on this one, its hard.

    Good Luck

    My son has ADHD and I know how you feel about that part. My son is on medication 30 mg of Methlyn. He is very verbal and talks like non-stop. I know it's hard for you and you have to put yourself in your son's shoes. That's how I changed my attitude. They have to deal with this on a daily basis just like you. Try a support group for parents or maybe even the school. I wish you well and I do understand. E-mail if you ever feel like talking. Best of luck.

    My son just turned 14 and is Aspergers diagnosed. I don't like the medication solutions, but sometimes it is necessary to give the counseling on structure in the household time to cooelesce. He can be titrated off the meds as the household stabilizes.
    There is a wraparound movement which attempts to provide mental healthcare to parents of Asperger's kids, but is actually a fasaad with the intention of committing the kids and casjing in all the new benefits available.
    Make sure your mental health professionals in your life have strong ethics!!

    I have a child with high functioning ASD. It can be extremely challenging. ADHD certainly would make it more so! I feel for you.

    The fact is, your child will not be motivated to get his social behaviour in check. It just doesn't mean the same to him as it does to the rest of the world. Therefore you need to reward socially acceptable behaviour with whatever it is that he loves. The reward needs to be short and sweet..like a small candy. If the reward is computer time, then you have that whole battle when you need to get him off the computer.

    There are some excellent resources out there. I purchased some social skill building books online from amazon.ca. Perhaps you can look there. Also, get some support. Join your local autism society. Contact the school for extra help. Google the Geneva Centre for autism. They have some wonderful programs and courses and materials.

    It really does feel like you're on your own a lot of the time with this. It feels like other people can't see past the difficult child to the wonderful child that you, as his mother, know him to be. We worry that people think poorly of us because we can't 'control' our kids. People are certainly becoming more aware, but there are still a lot of people who are clueless. Don't be afraid to educate those around you. Trying to do it alone is really hard. I hope you can find some useful tools and resources soon. Make sure you make some time for yourself as well. We're not on our best if all we do is devote our energy to our children. All the best.

    I am a parent with an adult 'child'. Our issues are a little different, but I do relate to the grinding, ceaseless, effort to cope with a child with major issues.
    I know the feeling of 'no motivation' coming from the child, except in their own areas of interest, which are obsessive.
    I had to give up my dreams of something 'fixing' my child. I had to look at it as a situation of acceptance and really of managing what was, not what I wanted it to be. I still struggle with that.
    This sounds crass, but I basically had to hire people to give me a break; do trade-offs with other parents; use services from the community; take medication and get therapy myself...
    My situation goes in cycles of crisis. I collapse when I get a break and then regroup and get enough energy for the next crisis.
    If I look back, I see that some of the most important things felt selfish at the time. But if we are doing all we can, really what more can we do but try to take something for ourselves from this life?
    Morally, it is not necessary for us to destroy our own health- that way, two lives are in crisis instead of one.
    I don't know what else to say just try to love your son as he is and love yourself too.





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