PKU Home Testing........?!


Question: PKU Home Testing........?
Hi

I know all babies are supposed to be tested for PKU since 1969 in the UK.
However, I WASN'T. Not sure why but I wasn't. Anyway, I was allergic to my Mum's breast milk so couldn't drink it and have read online that babies are tested as soon as they are digesting breast milk, so maybe that's why I wasn't tested.
I had delayed development growing up and still take longer than average to learn new things.
I also get what some doctors think could be partial seizures. I get more of these if I have anything with aspartame in it.
I also have excessive sweating and excessive thirst despite normal thyroid and diabetes tests and sleeping problems.
A Neurologist did mention PKU but said it was very rare and unlikely.

Just wondering if there is a home test I can buy for it in the UK and where from?

Answers:

how old are you? if you are not very old get tested now my daughter has pku you cant get a home test but you could ask your doctor for a blood test but i don't thin you have because its not just aspartame that effects you its the level of protine in mostly alot of food we eat my daughter can only have 3 exchanges worth of protine aday thats 60 grams of potatoes 35g of sweetcorn and say a packet crisps 25g then the rest is made up of fake food she gets from the chemist you could ask for a test but if you have had untreated ends up in development problems brain damage and you would of had a very Strong urine smell as well thats a very common symptom no harm in having a test but i think it would of done alot of damage by now if you have had it untreated hope that help can vist www.nspku.org

mum to 2 with pku :)




The consumer health information on answer-health.com is for informational purposes only and is not a substitute for medical advice or treatment for any medical conditions.
The answer content post by the user, if contains the copyright content please contact us, we will immediately remove it.
Copyright © 2007-2011 answer-health.com -   Terms of Use -   Contact us

Health Categories