Anybody with Lupus? help?!


Question: I have been tested by blood for Lupus but it came back normal... I have the rashes the joint pain and swelling, fatigue, anxiety, I get short of breath and chest pain and the sun and light hurts my eyes.... the sun makes my skin more red in my rashy areas. I am meeting with a rheumatologist but it isn't until feburary 18 and I am wondering what other tests are done. what your first symptoms were, and how long diagnosis takes....... By the way it really hurts when i run or put pressure on my knees or elbows is that a symtom or does that agravate it because I am in PE and we do stuff like that every day..... I really need help any help is welcomed


Answers: I have been tested by blood for Lupus but it came back normal... I have the rashes the joint pain and swelling, fatigue, anxiety, I get short of breath and chest pain and the sun and light hurts my eyes.... the sun makes my skin more red in my rashy areas. I am meeting with a rheumatologist but it isn't until feburary 18 and I am wondering what other tests are done. what your first symptoms were, and how long diagnosis takes....... By the way it really hurts when i run or put pressure on my knees or elbows is that a symtom or does that agravate it because I am in PE and we do stuff like that every day..... I really need help any help is welcomed

I was diagnosed with Lupus maybe 20 years ago, it took about 5 years of blood work before they ("THE DOCTORS") made this diagnosis. I suffered with joint pain, swelling, fatigue, raynauds,surgery, etc. Lupus can take years to diagnose. (its an autoimmune disease) An there are 4 forms of lupus. Cutaneous, Systemic, Drug Induced, & Neonatal. All the doctors did in the 5 years was put me on drugs to help the pain. I think the drugs were part of the caused of my lupus. "drug induced lupus" I now suffer from Crohn's disease, and Fibromyalgia, and cronic back pain. Which the symtoms can be very simalar. If you suffer with any gastro problems be sure to let your doctors know. Lupus and Arthritis are very simular also, if the blood test do not show Lupus you may have some type of Arthritis. Inflammation is the key word. Lupus, Arthritis, Fibromyalgia, they are all similar, an very painful. Best of luck to you,

I don't have lupus but I have been tested for it. There are several other symptoms that can be fairly telling.. your symptoms sound pretty bad. sorry. Maybe you should take a break from sunshine and PE until you meet with your rheuma. until then just try not to stress and wait for your appointment. good luck.





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