I have HS-Hidradenitis Suppurativa?!
Question: I just was diagnosed with HS - hidradenitis suppurativa.
Likely to be in Stage 1 of the disease.
Has no treatment nor cure but anyone else have it or know of someone who has it on what products to use ease some of the pain.
Answers: I just was diagnosed with HS - hidradenitis suppurativa.
Likely to be in Stage 1 of the disease.
Has no treatment nor cure but anyone else have it or know of someone who has it on what products to use ease some of the pain.
Hi miss Brit!
I also have a condition called Hidradenitis Supprativa.of re-occurring boils/ cysts/abscesses , that are often misdiagnosed as ingrown hairs, herpes, being unclean or over wieght and folliculitis. This is a newly diagnosed skin condition , but there is a lot of info out there.
Here is a link :
http://en.wikipedia.org/wiki/Hidradeni...
or the HS_USA page is ..
http://www.hs-usa.org/hidradenitis_sup...
Its better to try to start treatment soon, it can spread over the body if left untreated. These boils can become quite large and painful. Sometimes even lasting for weeks or months , do not attempt to POP them they can then tunnel under your skin and spread all over the body. Most common areas are armpits, groin, binkni line, inner legs, and intimate places and basically anywhere that sweats and rub against clothing. Stress is a big inducer.
There is a support group at MSN
http://groups.msn.com/HidradenitisSupp...
This is also a link to a PDF of a study in Germany about HS and if it is genetic... I thought it was intresting :
http://www.hs-foundation.org/pdf/2000_...
and a yahoo one, and I am open for questions!
I have had this for 8 years, I was misdiagnosed for a LONG time, It was very embarrassing, painful and scary. I am just trying to help out so you don