Anyone else here have Tricuspid Atresia?!
Question: I am 21 and have this congenital birth defect. I have never met another person with this defect, and from what I hear there aren't many people that 1. Have this defect and 2. Have the defect that are much older than me due to the fact that the corrective surgery was relatively new when I was born.
I was wondering because I wanted to know what type of restrictions others have overcome. Example; Has anyone with my condition given successful birth? Or joined a swim or track team?
Has anyone living with this condition done what they were told was impossible for them?
Answers: I am 21 and have this congenital birth defect. I have never met another person with this defect, and from what I hear there aren't many people that 1. Have this defect and 2. Have the defect that are much older than me due to the fact that the corrective surgery was relatively new when I was born.
I was wondering because I wanted to know what type of restrictions others have overcome. Example; Has anyone with my condition given successful birth? Or joined a swim or track team?
Has anyone living with this condition done what they were told was impossible for them?
Hi!
I'm 41, and I have Tricuspid Atresia also! I had my first Surgery in 1967, it was a Glenn Shunt, done at Johns Hopkins Hospital. I later had a modified Blalock-Taussig, done at the University of Alabama-Birmingham Hospital.
I'm like you ,for the longest time I thought I was one of the few with a Congenital Heart Defect, but there are a lot more of us than you might think. ! in 125 people are born with heart defects, and now just over half of us are adults! I'm a member of the Adult Congenital Heart Association, and I can think of FOUR other people with Tricuspid Atresia who post on our message boards, and that's just off the top of my head!
Drop by, register (it's free!) and get involved with the message boards... it is a lot of fun, and you will learn a lot. And you won't feel like you are out there by yourself anymore!