Can someone tell me if I might have Marfan Syndrome?!


Question: I have had 2 cysts, I had malocclusions, I am myopic, and i have pectus carinatum. do i have it or are these symptoms all just random?


Answers: I have had 2 cysts, I had malocclusions, I am myopic, and i have pectus carinatum. do i have it or are these symptoms all just random?

I doubt if the cysts have anything to do with it. Have you asked your doctor about it? Being myopic and having pectus problems would be minor symptoms. How is your heart and aorta? Is your arm span considerably longer than your height? Do either of your parents have Marfan or some of the symptoms? You can probably get a full list of symptoms at www.marfan.org, the official Marfan site. There are quite a few support groups out there where people would be glad to share their experience and opinions with you, most of them have times where you can IM in a conference type setting. I think I have just about any symptom that there is (except the pectus) plus some! I have had 5 aortic surgeries plus a few others that=t were probably marfan related. Contact me if I can help., I am involved in 2 of the groups, one is more active than the other and that would be marfan_support_and_chat.. With any kind of luck you aren't Marfan. But your best bet is to get ahold of the Marfan Foundation and locate a doctor in your area that is familiar with Marfans.
Feel free to contact me, I will offer any advice that I can.





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