I think i have lupus disease but my Rheumatologist will not confirm it...?!
Question: My Ana test was positive 1/1280+.I have red rashes all over my face,neck,shoulders,chest.This happens on a daily bases and it is very intence.It appears usually when i am feeling stressed or because of photosensitivity( sunlight) and goes away after one hour or so.I have pain in my joins,but this also goes away with aspirin.The rashes bother me the most, i'm always trying to wear clothes,so other people cannot see. My Rheumatologist says it looks like lupus,but the evidence is not enough for him to give me medicin,since all the other tests came out negative( Anti-Cardiolipin, Anti-DNA ,Anti-Ro/SS-A ,Anti-Sm antibodies) .I did not ask for a second opinion. It has been two years now.I still feel fatigue,have headaches,rashes...Is this all from stress and due to sensitivity of my skin?Should I repeat the test and ask for a second opinion?
Answers: My Ana test was positive 1/1280+.I have red rashes all over my face,neck,shoulders,chest.This happens on a daily bases and it is very intence.It appears usually when i am feeling stressed or because of photosensitivity( sunlight) and goes away after one hour or so.I have pain in my joins,but this also goes away with aspirin.The rashes bother me the most, i'm always trying to wear clothes,so other people cannot see. My Rheumatologist says it looks like lupus,but the evidence is not enough for him to give me medicin,since all the other tests came out negative( Anti-Cardiolipin, Anti-DNA ,Anti-Ro/SS-A ,Anti-Sm antibodies) .I did not ask for a second opinion. It has been two years now.I still feel fatigue,have headaches,rashes...Is this all from stress and due to sensitivity of my skin?Should I repeat the test and ask for a second opinion?
From personal experience, the ANA is the most common test for lupus, but since all the others came out negative which also usually come out positive it may be something else. It takes a long time for diagnosis of Lupus, took like two years to figure out what i had. You may have HSP which is extremely rare but they thought i had it, similarities to lupus except it goes away after a certain time period. Get a second opinion. Definitely get a second opinion you will most likely get medication, Prednisone, a steroid and Plaquniel (spelled wrong) an immunosuppresent. stops the pain.
My aunt has Lupus and it sounds like you have the same thing. I would get a second opinion from another doctor and just repeat all of the tests. There is no reason for you to go on sufferring with all of the pain.
Ask for a second opinion.
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