Need Medical Assitance for my friend...?!
Question: Epidermolysis Bullosa Simplex (Koebner's Disease). Celiac's Disease. Pancreatic Issues - Sphincter of Oddi Dysfunction.
These are the diagnoses' given to my friend after several years of sufffering. Now her doctors, upon giving the final two diganoses', don't want to treat her, instead sending her to the ER when she has problems. The ER admits her, pumps her full of narcotics, only to release her days later, addicted to pain meds and to detox alone at home.
This is getting stupid! Why won't a doctor spend some real time with her, get to know her as a person, get to know her medical history? She is not a file of paper!!
Does any one have any useful suggestions on how to go about getting respected by these doctors? She's back in the hospital again (4th time in the last 6 months!) and on narcotics. This is not the way she wants to live her life. She has 3 girls and a husband at home!!
Please help?!
Answers: Epidermolysis Bullosa Simplex (Koebner's Disease). Celiac's Disease. Pancreatic Issues - Sphincter of Oddi Dysfunction.
These are the diagnoses' given to my friend after several years of sufffering. Now her doctors, upon giving the final two diganoses', don't want to treat her, instead sending her to the ER when she has problems. The ER admits her, pumps her full of narcotics, only to release her days later, addicted to pain meds and to detox alone at home.
This is getting stupid! Why won't a doctor spend some real time with her, get to know her as a person, get to know her medical history? She is not a file of paper!!
Does any one have any useful suggestions on how to go about getting respected by these doctors? She's back in the hospital again (4th time in the last 6 months!) and on narcotics. This is not the way she wants to live her life. She has 3 girls and a husband at home!!
Please help?!
I don't know anything about your case, and it is entirely possible that your doctors are trying to do the best they can but do not believe that they can do any good in an acute situation.
That having been said, if your friend does not trust her doctors or their motives or feels they are not giving her good care, then just switch doctors, there are many out there.
SOUNDS LIKE SHE NEEDS TO SEEK A NEW DOCTOR OR GET A SECOND OPINION.
Sphincter of Oddi dysfunction is difficult to diagnose and treat. A person having this would have attacks of pancreatitis and a kind of gall bladder type attacks. It can be cured but an expert is needed, and this patient should seek out a gastroenterologist with experience with this rare disease in a large metropolitan medical center. Anything less than the best expertise in handling this could result in death.