Several questions here; doc found brain lesion but didn't tell me, et cetera!


Question: I've had this thing happening for about the past month. Whatever it is is causing me to have these spontaneous muscle spasms in my right hand and right foot, and lately it's been on the right side of my forehead too. They typically happen after some kind of movement of my right arm/hand. They come on suddenly, last up to a minute and I get the most horrible sensation with them, I can't even describe it. They're nearly crippling when they happen. I've been to 2 regular docs who had no idea and I went to neurologist last week. He did an EMG and asked me if I'd ever had an MRI on my brain. I said I hadn't, and he told me he would schedule one. I never heard a word about what might be causing my spasms during either tests. The doctor was completely mum about it all. I got a phone call that afternoon from the nurse telling me my MRI had been scheduled for March 11. I didn't hear a word from the doctor about anything and assumed that the tests must not have shown anything, else they would ..


Answers: I've had this thing happening for about the past month. Whatever it is is causing me to have these spontaneous muscle spasms in my right hand and right foot, and lately it's been on the right side of my forehead too. They typically happen after some kind of movement of my right arm/hand. They come on suddenly, last up to a minute and I get the most horrible sensation with them, I can't even describe it. They're nearly crippling when they happen. I've been to 2 regular docs who had no idea and I went to neurologist last week. He did an EMG and asked me if I'd ever had an MRI on my brain. I said I hadn't, and he told me he would schedule one. I never heard a word about what might be causing my spasms during either tests. The doctor was completely mum about it all. I got a phone call that afternoon from the nurse telling me my MRI had been scheduled for March 11. I didn't hear a word from the doctor about anything and assumed that the tests must not have shown anything, else they would ..

This is obviously something you need to bring up with the consultant that you should be seeing who will discuss the MRI findings with you appropriately.

I wouldnt be too worried about the 'lesion'. When doctors fill out request forms for investigations, they have to write something to justify why they are asking for it. MRIs especially are very expensive so you cant send someone along for one without writing some sort of clinnical explanation.

Lesion is very vague. It could refer to absolutely anything. It's more a blanket term saying "We're not really sure what we're looking for but based on the symptoms we think something might show up on MRI"

It's important you write down these questions to ask the consultant at your next appointment and have it explained straight from the horses mouth.

Be brave, be adult, and GET BACK IN THERE and get all tests necessary done. Your first Doctor was very wrong not to tell you what is going on, but, you either do as youre told, or expect to have a stroke or something when you least expect it. Come on, face up to it, theres millions of us out there thats going through the same thing everyday, cancer, heart attacks etc. Join the club, its called the Do all I can to get better Club. Good luck, GO NOW xxx

I'm sorry you got so upset, but try to relax - from the tests he did, the doctor can't possibly have known if there was a lesion or not, only suspected. It's likely that the tests didn't show anything, or else he wouldn't have ordered further investigations. If he'd suspected any one thing, he'd probably have prepared you for it by mentioning it then.
A lesion is doc-speak for a 'thing' - any physical thing that could be in your brain, from swelling to infection or a plaque. And since it's so non-specific, it can be caused by many different things, not all of them serious.
Go back to your doctor, explain your worries so he can reassure you and explain to you what he thinks may be the problem. And then you can rescheule your MRI, and find out for sure.
Good luck!





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