Hey all please help?!
Question: after world war ll wat where the TREATMENTS for this disease the TAY-SACHS disease.
thax so much for ur help
Answers: after world war ll wat where the TREATMENTS for this disease the TAY-SACHS disease.
thax so much for ur help
Presently there is no treatment for Tay-Sachs disease. Anticonvulsant medicine may initially control seizures. Other supportive treatment includes proper nutrition and hydration and techniques to keep the airway open. Children may eventually need a feeding tube.
What is the prognosis?
Even with the best of care, children with Tay-Sachs disease usually die by age 4, from recurring infection
The National Institute of Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health (NIH), conducts research about Tay-Sachs disease in laboratories at the NIH and also supports additional research through grants to major medical institutions across the country.
Select this link to view a list of studies currently seeking patients.
Organizations
National Tay-Sachs and Allied Diseases Association
2001 Beacon Street
Suite 204
Brighton, MA 02135
info@ntsad.org
http://www.ntsad.org
Tel: 617-277-4463 800-90-NTSAD (906-8723)
Fax: 617-277-0134
Genetic Alliance
4301 Connecticut Avenue, N.W.
Suite 404
Washington, DC 20008-2369
info@geneticalliance.org
http://www.geneticalliance.org
Tel: 202-966-5557 800 336-GENE (4363)
Fax: 202-966-8553
March of Dimes Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
askus@marchofdimes.com
http://www.marchofdimes.com
Tel: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291
Prepared by:
Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
There currently are no treatments except experimental ones. Prevention is the primary way to deal with it. It is an inherited disease but the gene must be passed on to the child by both parents. If this disease is in both partners families they should get tested to see if they might have a baby with it. If they both have the gene then they need serious genetic counselling. This is a horrible disease to give to a child because they are born apparently normal and at 6 months start deteriorating until they are blind, deaf, and can't swallow. They die at 2-5 years old. There are two more rare forms of this disease. One appears in juveniles 2- 10 years old. They die by the time they are 5-15 years old. The other is the adult form that appears at 20-30 years old. It is not fatal, it sentences the person to years of deteriorating neurological status and loss of ability to function.