How long did you have celiac before you were diagnosed?!
Question: How long did you have celiac before you were diagnosed!?
I was wondering, to anybody who has celiac, how long was it before any of you got diagnosed!? Months!? Years!? I'm asking this because, well, I just diagnosed with a connective tissue disorder (ehlers danlos syndrome), and my WBC count was slightly elevated (10!.9) and my celiac levels were slightly elevated!. My blood pressure keeps getting lower but my doctor who diagnosed me (who is also a geneticist and specializes in rare genetic conditions) said that it was probably due to EDS!. I have mucus that comes out w/o stool, clothes are looser but the scale says I weigh the same that I've always weighed, muscle cramps, joint pain, tingling and numbness in fingers, toes, etc!.!.!.I've always had rotten egg burps/vomiting episodes/dizzy spells ever since I was little, weird menstrual problems, vaginal dryness, dry eyes, dry mouth (on and off), etc!.!.!.I DO haveoverly flexible joints, my skin is really stretchy, so I do know that I have EDS(classical type) and that it causes symptoms like this as well
* 12 minutes ago
* - 3 days left to answer!.
Additional Details
10 minutes ago
But I'm wondering if it can be causing EVERYTHING I feel!. I still feel like I might have sjogren's syndrome or celiac or something, or I don't know if I'm just being paranoid!.
Anyway, how long did it take you guys before you were officially diagnosed with it!? I'm kind of scared cause I'm wondering if my symptoms could be signs of small intestinal cancer!. Although sometimes, my stomach problems will completely clear up, and then all of a sudden they'll hit again (like a flare up)!. So my symptoms are basically intermittent, they're never really constant or there every minute of everyday!.
7 minutes ago
Also, I'm very paranoid about the tools they use for endoscopies!. I was supposed to have one because I'm afraid they don't sterilize them properly!. Especially since I heard about that place in las vegas nevada with the used needles and stuff at the endoscopy center!. Have any of you ever gotten a disease like HIV or hepatitis from unsterilized tools before!? Or have you ever heard of someoen getting HIV from an unsterilized endoscope before!?
Sorry for all the questions!. Thank you!
4 minutes ago
One more thing!. I get really bad acid reflux!. I get heartburn and a gurgling in my throat!. For a few days it went away for awhile!. But then it came back!. I've been getting GERD since last may!. It has gotten worse!. Once in awhile I'l have a break and it'll go away for a few days!.
3 minutes ago
I am now 20!.Www@Answer-Health@Com
* 12 minutes ago
* - 3 days left to answer!.
Additional Details
10 minutes ago
But I'm wondering if it can be causing EVERYTHING I feel!. I still feel like I might have sjogren's syndrome or celiac or something, or I don't know if I'm just being paranoid!.
Anyway, how long did it take you guys before you were officially diagnosed with it!? I'm kind of scared cause I'm wondering if my symptoms could be signs of small intestinal cancer!. Although sometimes, my stomach problems will completely clear up, and then all of a sudden they'll hit again (like a flare up)!. So my symptoms are basically intermittent, they're never really constant or there every minute of everyday!.
7 minutes ago
Also, I'm very paranoid about the tools they use for endoscopies!. I was supposed to have one because I'm afraid they don't sterilize them properly!. Especially since I heard about that place in las vegas nevada with the used needles and stuff at the endoscopy center!. Have any of you ever gotten a disease like HIV or hepatitis from unsterilized tools before!? Or have you ever heard of someoen getting HIV from an unsterilized endoscope before!?
Sorry for all the questions!. Thank you!
4 minutes ago
One more thing!. I get really bad acid reflux!. I get heartburn and a gurgling in my throat!. For a few days it went away for awhile!. But then it came back!. I've been getting GERD since last may!. It has gotten worse!. Once in awhile I'l have a break and it'll go away for a few days!.
3 minutes ago
I am now 20!.Www@Answer-Health@Com
Answers:
my housemate was extremely sick for a year!. she was literally bed ridden sometimes with every ailment god would throw at her!. She went through every test possible!. numerous blood tests, xrays, MRIs, PET scan, body fluid analysis etc!.!.!.
Her doctor had a hunch one day and put her on an all gluten diet for afew days and then he would put an endoscope down her throat to see if she was a celiac!.
She was so sick from the gluten diet the doctor couldnt preform the procedure and she was diagnosed with celiac disease!. Now she is on a gluten free diet and is the healthiest she has ever been
suggest an all gluten diet to your doctor and see what happens!.
btw (ill put my nurses hat on now) dont diagnose yourself, especially from the internet!. Ive known many people who get worked up after diagnosing themselves and it turns out to be nothing!. Ive had patients thinking that they have gastrointestinal cancers only to find out they just have irritable bowel sydrome!. Symptoms can be caused by many conditions including many that are half psycho somatic or stress related!.
dont be paranoid about tools used during procedures!. it is highly unlikly that just because you think you will contract something from equipment that you will actually contract something!. If you go to an accredited medical facility you are safe!.
good luckWww@Answer-Health@Com
Her doctor had a hunch one day and put her on an all gluten diet for afew days and then he would put an endoscope down her throat to see if she was a celiac!.
She was so sick from the gluten diet the doctor couldnt preform the procedure and she was diagnosed with celiac disease!. Now she is on a gluten free diet and is the healthiest she has ever been
suggest an all gluten diet to your doctor and see what happens!.
btw (ill put my nurses hat on now) dont diagnose yourself, especially from the internet!. Ive known many people who get worked up after diagnosing themselves and it turns out to be nothing!. Ive had patients thinking that they have gastrointestinal cancers only to find out they just have irritable bowel sydrome!. Symptoms can be caused by many conditions including many that are half psycho somatic or stress related!.
dont be paranoid about tools used during procedures!. it is highly unlikly that just because you think you will contract something from equipment that you will actually contract something!. If you go to an accredited medical facility you are safe!.
good luckWww@Answer-Health@Com
Hi,
Based on all these, you may have MCTD, mixed connective tissue disease!. You have described may symptoms that they fit to may of those connective tissue diseases!.
this problem can't be solved here, GO TO A RHEUMATOLOGIST!
P!.S!. Celiac disease is not something to be diagnosed with blood test, it is diagnosed with clinical symptoms and the diagnose is confirmed with endoscopy and biopsy!.
I wish you all the best!.Www@Answer-Health@Com
Based on all these, you may have MCTD, mixed connective tissue disease!. You have described may symptoms that they fit to may of those connective tissue diseases!.
this problem can't be solved here, GO TO A RHEUMATOLOGIST!
P!.S!. Celiac disease is not something to be diagnosed with blood test, it is diagnosed with clinical symptoms and the diagnose is confirmed with endoscopy and biopsy!.
I wish you all the best!.Www@Answer-Health@Com
okay get the endoscopy done!. I was a big baby and i just had it done in January!. Everything in the surgery center is sterile!.
I have GERD and diverticulitis also IBS, My gerontologist tested me for celiac disease and the blood test came back negative, Get the recommended tests done they will benefit you in the long run, I know it is scary but it has to be done to figure out what is going on, Good luck to you !Www@Answer-Health@Com
I have GERD and diverticulitis also IBS, My gerontologist tested me for celiac disease and the blood test came back negative, Get the recommended tests done they will benefit you in the long run, I know it is scary but it has to be done to figure out what is going on, Good luck to you !Www@Answer-Health@Com
the best testing for celiac or other types of gene related gluten intolerance is through enterolab!.com!.
My daughter was sick for 8 years with some of the symptoms you describe as well as others you did not list!. When the problems were mild I was told there was nothing wrong with her!. By the time she was 13 she was skin and bones and could not keep anything down- it was awful!. It was suggested , by a nutritionist, not a doctor, that she might have food allergies!. We started on the road to finding out and discovered she was gluten intolerant!.
We did some blood testing at the doctors office and for her and my other daughter were told that the celiac diagnoses was inconclusive!. In my research I have found that the medical community in the US still has a very limited knowledge and understanding of Celiac and the testing methods are very poor!.
Enterolab uses testing that has bee used in European countries for the last 30 years- it is very thorough and comprehensive- it has given us the best information for both of my daughters - it is a simple but highly accurate test that will give you a lot more information than you will get from 20 tests at your doctors office!.Www@Answer-Health@Com
My daughter was sick for 8 years with some of the symptoms you describe as well as others you did not list!. When the problems were mild I was told there was nothing wrong with her!. By the time she was 13 she was skin and bones and could not keep anything down- it was awful!. It was suggested , by a nutritionist, not a doctor, that she might have food allergies!. We started on the road to finding out and discovered she was gluten intolerant!.
We did some blood testing at the doctors office and for her and my other daughter were told that the celiac diagnoses was inconclusive!. In my research I have found that the medical community in the US still has a very limited knowledge and understanding of Celiac and the testing methods are very poor!.
Enterolab uses testing that has bee used in European countries for the last 30 years- it is very thorough and comprehensive- it has given us the best information for both of my daughters - it is a simple but highly accurate test that will give you a lot more information than you will get from 20 tests at your doctors office!.Www@Answer-Health@Com