Ok this pissed me off. some idiot...?!
Question: Ok this pissed me off!. some idiot!.!.!.!?
who runs a support group for fibromyalgia on yahoo stated that she was "cured" of fibro!. my problem with this is no one is "cured" of fibro!. there is no cure because they don't even know what causes it! you can do many things to attempt to get it under control and, if you are lucky, good for you if you do!. she obviously did!. but just because someone (most of us) struggle with it daily and do not improve doesn't mean that!.!.!. oh just ggrrr if this woman is anywhere out there!.!.!. shame on you!. if you run a support group, you should know not to make the ignorant comments you made several months ago!. you took fibro awareness and the judgements that are passed on people with fibro back about 10 years!Www@Answer-Health@Com
Answers:
my guess is that she never truly had Fibromyalgia-
she had something else (vitamin deficiency, depression, etc!.) that responded to her 'cure'
Many doctors will label anyone with aches and fatigue with FMS-Just today i saw a show where the person actually had hypothyroid-it even showed up in her blood tests for years-but the doc told her it was FMS and she just had to live with!.!.!.!.
Some people say that their FMS has gone away on its own---it may be possible that the body itself found a way to fix itself---but my guess is they didn't truly have it
I have had it for about 30 years-although the symptoms have waxed and waned-even at my best i was only 80% better--and that didn't last too long!.
I like the message board at
www!.ivilllage!.com
they are accepting of people's differing views-even the ones taht seem to be promoting quackery!.!.!.!.
If her cure was so great-it would be known by now-if it worked for a few people who told a few people who tried it, etc!.!.!.!.and it was such a miracle-many other message boards/support groups would be talking about it!.!.!.!.
there is a so called expert on about!.com still saying it it a musculoskeletal condition when the experts have felt that it is a disorder of teh central nervous system for about 10 years (evidenced by the fact that it is the neuro drugs taht show promise-not the musculoskeletal)
Dan's comment that you shouldn't be angry at her becasue she may have been misdiagnosed is misguided-
\
no matter what anyone's diagnosis is-they shouldn't be berating others because of teh path their illness/treatment takes
that woudl be like me saying that since I didn't die from teh flu-you won't either-that makes no sense!.!.!.Www@Answer-Health@Com
she had something else (vitamin deficiency, depression, etc!.) that responded to her 'cure'
Many doctors will label anyone with aches and fatigue with FMS-Just today i saw a show where the person actually had hypothyroid-it even showed up in her blood tests for years-but the doc told her it was FMS and she just had to live with!.!.!.!.
Some people say that their FMS has gone away on its own---it may be possible that the body itself found a way to fix itself---but my guess is they didn't truly have it
I have had it for about 30 years-although the symptoms have waxed and waned-even at my best i was only 80% better--and that didn't last too long!.
I like the message board at
www!.ivilllage!.com
they are accepting of people's differing views-even the ones taht seem to be promoting quackery!.!.!.!.
If her cure was so great-it would be known by now-if it worked for a few people who told a few people who tried it, etc!.!.!.!.and it was such a miracle-many other message boards/support groups would be talking about it!.!.!.!.
there is a so called expert on about!.com still saying it it a musculoskeletal condition when the experts have felt that it is a disorder of teh central nervous system for about 10 years (evidenced by the fact that it is the neuro drugs taht show promise-not the musculoskeletal)
Dan's comment that you shouldn't be angry at her becasue she may have been misdiagnosed is misguided-
\
no matter what anyone's diagnosis is-they shouldn't be berating others because of teh path their illness/treatment takes
that woudl be like me saying that since I didn't die from teh flu-you won't either-that makes no sense!.!.!.Www@Answer-Health@Com
I agree a hundred percent with you!. There is no cure!. I am going for lidocaine infusions in a few weeks and I've also had shots in my neck and back!. I take so many medicines to help me deal with it;hydrocodone,lyrica,relaphen,morephene!.!.!. lamictal(costs my ins!.$501!.00) and klonapen(spelling incorrect)!. No cure, just suffer or go through like without any quality!. I can't swollow that and probably never will thats why I have to go to mental health to help me deal with it along with all the doctor appointment and cant forget pain managementqWww@Answer-Health@Com
Shouldn`t you have said something several months ago when she made those comments!?
Find the support group and turn her in to the national fibromyalgia support group!.Www@Answer-Health@Com
Find the support group and turn her in to the national fibromyalgia support group!.Www@Answer-Health@Com
And your question is!?Www@Answer-Health@Com
I can relate to your concern, however, sometimes mis-diagnosis happens!. She may have had something else that was diagnosed as Fibro!. I was diagnosed as Chronic Fatigue Syndrome or CFS!. The doctor had not done everything possible to determine the diagnosis!. I was later diagnosed with a Brain Barrier leak after seeing a neurologist!.
I attended the meeting of the Denver chapter for Fibro myalgia and I had similar symptoms, so I know your concern!. By taking anger at the person, you are not helping yourself get any better!. Anger makes things worse!.
I urge you to cool your jets on this woman and her comments!. By reaching for calm, relaxing way of life, you can be as good as it gets!. If another diagnosis is for you, then you too can be well!. Cortisone shots help some people and rest will help to relax the muscles!. Please take things a little less serious!. Find a good book or some hobby you can do to take your mind off the normal happenings of the day!. Some say that yoga or other relaxation therapy works for them!. It does not all go away, just makes things more bearable!.
Good luck, my friend!. Anything is possible!. Have you considered religion!? Perhaps some light religious activity might help!. Maybe a church that deals with helping you heal yourself!.Www@Answer-Health@Com
I attended the meeting of the Denver chapter for Fibro myalgia and I had similar symptoms, so I know your concern!. By taking anger at the person, you are not helping yourself get any better!. Anger makes things worse!.
I urge you to cool your jets on this woman and her comments!. By reaching for calm, relaxing way of life, you can be as good as it gets!. If another diagnosis is for you, then you too can be well!. Cortisone shots help some people and rest will help to relax the muscles!. Please take things a little less serious!. Find a good book or some hobby you can do to take your mind off the normal happenings of the day!. Some say that yoga or other relaxation therapy works for them!. It does not all go away, just makes things more bearable!.
Good luck, my friend!. Anything is possible!. Have you considered religion!? Perhaps some light religious activity might help!. Maybe a church that deals with helping you heal yourself!.Www@Answer-Health@Com
She should not be running a support group for FM - if she is supposedly cured then she should step down and have someone else run the group!. I have Lupus and get tired of people thinking it is environmental or you can cure yourself from it - if that was the case - I would not be taking medication and having all the fun effects that the disease has to offer!.
Let me state what FM is for all who read this:
Fibromyalgia (FM) is a chronic illness characterized by pain, fatigue and poor sleep!. Initially FM was thought to be a musculoskeletal disorder because much of the pain experienced seems to be in the muscles!. However, extensive research is revealing that fibromyalgia is more accurately defined as a problem of disordered sensory processing originating in the central nervous system and causing central sensitization and pain amplification!.Www@Answer-Health@Com
Let me state what FM is for all who read this:
Fibromyalgia (FM) is a chronic illness characterized by pain, fatigue and poor sleep!. Initially FM was thought to be a musculoskeletal disorder because much of the pain experienced seems to be in the muscles!. However, extensive research is revealing that fibromyalgia is more accurately defined as a problem of disordered sensory processing originating in the central nervous system and causing central sensitization and pain amplification!.Www@Answer-Health@Com
Is there a question somewhere in this!? You are blowing off steam this is not the place to do so!.Www@Answer-Health@Com