Anyone know about -Neuronal Intestinal Dysplasia?...In Kids? Also known as NID..!
Question: Anyone know about -Neuronal Intestinal Dysplasia!?!.!.!.In Kids!? Also known as NID!.!.!.!?
I was just wandering if anyone can help me!.!.
!.My son(who is intellectualy disabled and has autism)Was diagnosed with NID 1-1/2 years ago!.!.He is under a professor at RCH (Melb)!.!.
They have been doing a trial using electric currents through the bowel!.!.I have been told my son will have to have a "Stoma" put in by the end of this year if the trial does not work!.!.We have already done the 6 months trial but have gone and gotten a portable device to do it at home!.!.!.
DOES anyone have any info that will help my husband and i concider what would be the best for our boy!?!.!.!.
He is 11,has had bowel probs since birth,and has also been on Movicol and Duralax SP drops for over 4 years now!.!.!.
We are very confused as what to do!.!.!.
Thank you for your time!.!.!.Www@Answer-Health@Com
!.My son(who is intellectualy disabled and has autism)Was diagnosed with NID 1-1/2 years ago!.!.He is under a professor at RCH (Melb)!.!.
They have been doing a trial using electric currents through the bowel!.!.I have been told my son will have to have a "Stoma" put in by the end of this year if the trial does not work!.!.We have already done the 6 months trial but have gone and gotten a portable device to do it at home!.!.!.
DOES anyone have any info that will help my husband and i concider what would be the best for our boy!?!.!.!.
He is 11,has had bowel probs since birth,and has also been on Movicol and Duralax SP drops for over 4 years now!.!.!.
We are very confused as what to do!.!.!.
Thank you for your time!.!.!.Www@Answer-Health@Com
Answers:
i am sorry that i don't have any answers for you!.!.!. but i did find a parent 2 parent type of site that may be helpful!.!.!.
http://parent-2-parent!.com/forum/showthr!.!.!.Www@Answer-Health@Com
http://parent-2-parent!.com/forum/showthr!.!.!.Www@Answer-Health@Com