Has anyone heard of EDS? (ehlers danlos syndrom)?!
Question:
Has anyone heard of EDS? (ehlers danlos syndrom)?
I have just been disgnosed with it...
i just thought i had a cool party trick; because i can turn my hand 360 degrees and then untwist it.
haha. i just thought i was weird...
if anyone has heard of it is there anything i should look out for or be careful of?
thanks!!
Answers:
People with EDS should have regular eye exams. Nearsightedness (myopia) is a common condition and can be corrected with prescription glasses or contact lenses. People with one particular form of EDS (EDS VI) are particularly at risk for serious eye conditions and should consult a doctor with experience treating EDS.
http://www.arthritis.ca/types%20of%20art...
Protecting your joints means using your joints in ways that avoid causing excessive stress on them. Benefits include less pain and greater ease in doing tasks. Three ways you can protect your joints are by pacing, positioning and using assistive devices.
Pacing, by alternating heavy or repeated tasks with easier tasks or breaks, reduces the stress on your joints and allows weakened muscles to rest.
Positioning joints wisely helps you use them in ways that avoid extra stress. For example, use larger, stronger joints to carry loads (for example, use your arms and not your fingers to carry grocery bags) and change your position frequently.
Using assistive devices, such as canes, raised chairs, and gripping and reaching aids can help simplify daily tasks. For bathing, grab-bars and shower seats can be very helpful for conserving energy and avoiding falls.
Unprotected exposure to the sun presents a heightened risk of skin damage for people with EDS. To avoid sun exposure, use a sunscreen with a sun protection factor (SPF) of 15 or higher and wear long sleeves, long pants and a wide brimmed hat during peak daytime hours.