What side effects have you had while on topamax?!


Question:

What side effects have you had while on topamax?

My doctor put me on Topamax about 3 months ago for migraines and partial focal seizures. I also have fibromyalgia. I am at 100 mg of the Topamax and have been there for about a 1 and a half months. First of all I am still having seizures and and I am still having migraines, I am also not sleeping hardly at all.... I have appetite, everything tastes nasty and pop tastes like metal, not to mention my feet and legs tingle like they are on fire all the time and my brain is like its on permanant vacation. The other day I tried to put my milk in the cabinant and my deli ham in the freezer not to mention I just forget words and what I am saying. But worse of all I am having extreme panic attacks and a severe mood change that goes from happy one minute to biting my husbands head off the next... the mood swings increased when about 3 weeks after I went to 100 mg. Has anyone else had these type of symptoms and what did you do?? I cant stand all of this its driving me crazy!!!!!

Additional Details

6 days ago
I forgot to mention that I am also starting to experience hair loss how do I I counteract that.


Answers:

I have been on topamax for years now. What you are having does not seem to be part of this med. Maybe a memory loss but not the rest. I'm on a much higher dose then what you take also.

I also have fms and run a group for it for the last 8 years. I'm up to date on all the information on it and what you are saying sounds more like a flare then anything else. The seizures sound just like convulsive migraines like i have also.

You have not given the meds time to work. It takes about 6 weeks to really kick in and work properly. Please talk to your dr about all your concerns. See a rhemotologist about your fms, and a neurologist about your migraines and ask them about convulsive migraine theory.

Knowing that you are ok, will help you calm down the panic attacks itself. You really need to sleep at night to get the REM sleep that is needed to fight all this fatigue that you have. That itself would make anyone snappy and bite someone's head off. Refrain from napping during the day so you can actually sleep at night for a change.

Email me if you need talk or chat. Humor4fms@yahoo.com




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