Does anyone here have SLE Lupus?!
Question:
Does anyone here have SLE Lupus?
Additional Details
5 days ago
I was diagnosed with SLE Lupus and Fibro almost 12 yr ago. I know I have had it much longer though due to symptoms. I just never had a doctor know what it was until I had my son premature. I am trying to find others who have SLE Lupus to compare treatment plans, medications and symptoms. I am currently experiencing a bad flare-up and have had a few this year. Email me if you have SLE.
Answers:
Hi I am Chris. I have had SLE among other autoimmunes since my early teens. Like you I was not diagnosed until I had my second child, though I knew I had it before the dr's figured it out. I had the critera, but my ANA was coming back positive than Negative. It is a difficult disease to manage. That is for sure. I and a few others run an autoimmune/ Lupus support group/ message Board in Yahoo Groups. we have about 40 memebers with 2,000-3,000 posts a month average. we talk a lot, not just about the illness, but how it changes our lives, how we adjust, etc. we also go off topic and try to give everyone a laugh or two. some of us are rather silly and or funny, plus theres a lot of brain fog. We also have a lot of Lupus related Information. I am the main researcher, but others do it as well. I am sorry your in a major flare. I just am getting over one now. I was on IV chemo for several months, and its just now calming down, but still have bad days. I will give you my personal email, and the groups link In the source area.
By the way My name is Chris