What is your experience with Sarcoidosis?!

What is your experience with Sarcoidosis?

I was recently diagnosed with Sarcoidosis and am wondering what others experience has been after being diagnosed. I have found that I am getting sick quite easily, basically catching every little bug that is going around and then some!

Hi, I do not have sarcardosis, but run an online support group for people with autoimmune diseases. From what I researched and already knew about this illness I know that it mainly attacks the lungs, and unlike most autoimmune diseases, usually does not last forever, with treatment it may last about 24-36 months. It seems that you are getting ill from the illness itself, but possibly the treatments that you are on for it. My guess is you may be on drugs such as prednison, methotrexate,Rheumatrex, Trexall , or a medrol pack or a combo of these drugs. all which supress the immune system. making a person much more suseptibale to infection. Including colds, flus, viruses, even allergies. which once finished with treatments after 5-6 months your body should return to a normal immune function, and not be so easily suseptiable to those viruses and bacterial infections. Many people on these drugs, do tend to get ill easier then those who are not ill and not on them. Also over time, your body may build a tolerance and not catch every little bug, and make you ill, even while in treatment. But to get rid of the Sarcardosis, you do need these medications, and any other treatments your Dr has percribed. So you can get rid of this illness. Right now your own body has produced anti-bodies that are attacking themselves causing the Sarcardosis. But it wont be forever. I know MTV ex VJ Duff had it, and was rather ill for awhile. She made a full recovery within 2-3 years. And was happy she went through with the treatment, even with the side effects and discomport, she said it saved her.

I do own a online message board/support group for those with autoimmune diseases, who need answers and support, if you feel like you need some help for now, we can help with research and support, and a lil craziness (a funny bunch). Also a smart bunch.
I am also going to include the link that I got some of the information for Sarcoidodis from.
I hope this helped you understand why you are catching everything, but also helps you realize that while difficult it will not last forever, like most chronic autoimmune diseases
Good Luck
Chris