(Postural Orthostatic Tachycardia Syndrome) POTS: Help!?!
Question: (Postural Orthostatic Tachycardia Syndrome) POTS: Help!!?
I've had POTS since early March of this year!. I was diagnosed in May!. I have been put on a low dosage of fludrocortisone!. Works a little, as I can sit upright, for the vast part of the day, although I feel kinda unsteady!. I can also stand for 5 mins, without immediately keeling over, never used to be the case!. My main problems now are feeling breathless when I attempt to walk, and also I feel bagged up, when only eating a little!. I have chronic fatigue and vaso-vagal syncope, too!. I would love to improve my quality of life enough just to fit in half an hours walk, without keeling over!! :)
Any advice/ pointers would be embraced, with a wide-armed hug!!
Thanks Bundles,
From Cassie!.Www@Answer-Health@Com
Any advice/ pointers would be embraced, with a wide-armed hug!!
Thanks Bundles,
From Cassie!.Www@Answer-Health@Com
Answers:
This sounds a bit more severe than the typical POTS case!. POTS is usually a mild form of orthostatic hypotension!. Also sounds like your syncope is likely to be related to orthostasis!.
If you haven't done so, you should be seen by a Neurologist - preferably one that specializes in autonomic nervous system disorders (unfortunately that's pretty subspecialized and you may need to go to a major university or settle for someone who has a particular interest in it)!.
In addition to the medication you should have the head of your bed up on blocks (so you don't sleep completely flat), wear specialized support hose specifically made for this problem (Jobst stockings), get up slowly and let yourself equilibrate each time, liberalize fluid and salt intake, small meals, avoid hot tubs/overheating, and see if there is a physical therapy program for this problem in your area!. There are other medications that could help if you aren't under control!.!.!.see the specialist about that!.
Good luck!.Www@Answer-Health@Com
If you haven't done so, you should be seen by a Neurologist - preferably one that specializes in autonomic nervous system disorders (unfortunately that's pretty subspecialized and you may need to go to a major university or settle for someone who has a particular interest in it)!.
In addition to the medication you should have the head of your bed up on blocks (so you don't sleep completely flat), wear specialized support hose specifically made for this problem (Jobst stockings), get up slowly and let yourself equilibrate each time, liberalize fluid and salt intake, small meals, avoid hot tubs/overheating, and see if there is a physical therapy program for this problem in your area!. There are other medications that could help if you aren't under control!.!.!.see the specialist about that!.
Good luck!.Www@Answer-Health@Com