West syndrome?!


Question:

West syndrome?

ANYBODY KNOW SOMEONE WITH THIS CONDITION


Answers:

I don't personally know any child with West Syndrome (otherwise known an Infantile Spasms), but if you do and you're in the UK, the site below is well worth visiting: West Syndrome Support Group. This is from the opening page: 'The West Syndrome Support Group was formed in 1989, in the UK, by parents of children suffering from West Syndrome. The group aims to provide support and information about this debilitating condition and its consequences for the child. Currently there is very little information available on the subject so we welcome any contributions to our knowledge. Please visit our Forum where you can add your child's story, discuss your problems and receive support and advice from other parents.'




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