Have you had Cushing's Disease?!
Question: Have you had Cushing's Disease!?
I have all the symptoms of Cushing's Disease!. If you have had it and been treated, please tell what the treatment was and how you feel now!. Please ONLY respond IF you have had it!. I see the doc next week!.Www@Answer-Health@Com
Answers:
I had it!.
I had the disease form, that is to say, pituitary tumor, but it can also be caused by adrenal tumors, tumors elsewhere, use of steroids for other diseases and there is a form caused by overuse of alcohol called psuedo-cushing's!.
I was treated with surgery of the pituitary!. My tumor grew back!. My options were explored (second pituitary surgery, radiation, bilateral adrenalectomy) and the adrenals it was decided, had to go in my case!. Each case is different!. Not everyone has their tumor grow back!. Not everyone has a BLA!.
Personally, I have not fared well, but that is because my doctors waited too long to treat me!. It was 12 years before I got surgery from the discovery of my tumor and I was sick before that!. My testing was inconsistent as I had the cyclical form and most doctors do not believe in that form!.
I however have seen others who have fared better or worse!. Cushing's really requires you to educate yourself, get copies of everything (wish I had done it earlier on) and learn patterns!. Not just cortisol goes out of whack!. An expert sees this - a regular endo disregards the little things that later leads to a lot of problems potentially!.
If your doctor does not take you seriously, go to another!. Make sure you get adequate testing!. There are a few diseases that mimic Cushing's like growth hormone deficiency and PCOS but do not have hallmarks like the straie, hump and well, when you have it, you know it is different!. I got lucky and had all of them!. So my doctors stopped at PCOS and wondered why metformin only made me sick!
Hint - if the medications to treat symptoms do not work - they are not treating the underlying cause!. For instance, even accutain did not work on my acne!.
I hope you do not have it - but if you do - fight to get treated sooner rather than later!. It is tiring!. But necessary!.Www@Answer-Health@Com
I had the disease form, that is to say, pituitary tumor, but it can also be caused by adrenal tumors, tumors elsewhere, use of steroids for other diseases and there is a form caused by overuse of alcohol called psuedo-cushing's!.
I was treated with surgery of the pituitary!. My tumor grew back!. My options were explored (second pituitary surgery, radiation, bilateral adrenalectomy) and the adrenals it was decided, had to go in my case!. Each case is different!. Not everyone has their tumor grow back!. Not everyone has a BLA!.
Personally, I have not fared well, but that is because my doctors waited too long to treat me!. It was 12 years before I got surgery from the discovery of my tumor and I was sick before that!. My testing was inconsistent as I had the cyclical form and most doctors do not believe in that form!.
I however have seen others who have fared better or worse!. Cushing's really requires you to educate yourself, get copies of everything (wish I had done it earlier on) and learn patterns!. Not just cortisol goes out of whack!. An expert sees this - a regular endo disregards the little things that later leads to a lot of problems potentially!.
If your doctor does not take you seriously, go to another!. Make sure you get adequate testing!. There are a few diseases that mimic Cushing's like growth hormone deficiency and PCOS but do not have hallmarks like the straie, hump and well, when you have it, you know it is different!. I got lucky and had all of them!. So my doctors stopped at PCOS and wondered why metformin only made me sick!
Hint - if the medications to treat symptoms do not work - they are not treating the underlying cause!. For instance, even accutain did not work on my acne!.
I hope you do not have it - but if you do - fight to get treated sooner rather than later!. It is tiring!. But necessary!.Www@Answer-Health@Com