Have you had an ileostomy reversal?!


Question:

Have you had an ileostomy reversal?

I had an emergency ileostomy done in Feb of this year because of ulcerative colitis, and the doctor's said it might be reversed sometime in the future (I have no idea when). I was just wondering what your reversal experience was like? How long were you in the hospital? How long of a recovery time? And what was it like emotionally? Thanks!


Answers:

hi kay, I have an ileostomy due to crohns for 21 yrs.
Have you looked into calling the national Crohns & Colitis Foundation for answers to your questions. Their HQ is out of NYC and they have a toll free number you can call M-F ( 9 am - 5 pm EST) 888.MY.GUT.PAIN (888-694-8872). It is run by professionals who are familiar with IBD (Crohns/UC). Their site is listed below. While there you can find information on surgery, diet, exercise, women's issues, and even locate a local CCFA chapter where you can meet others like yourself in the same situation.

Also, the united ostomy association of america has a site and number you can contact as well. They are run by ostomates who have an ostomy due to CD, UC, and colon cancer.

Resection surgery outcomes will vary in each pt. depending on their dx, age, medications if any they are on, as well as their health habits (drinking, smoking, drugs). I've met a few who had the reversal and wound up getting the ostomy back due to severe pouchitis or diarrhea from the j-pouch. That varies in each person too so I'd get a 2nd opinion if necessary to see if you are able to have a reversal.

Definitely call the CCFA and UOAA and request to speak with a pt. who's had the reversal done. It's best to talk w/someone who's been through it and can tell you what it's like. Best of health to you.




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