Anyone with a cavernoma of the left temporal lobe?!


Question:

Anyone with a cavernoma of the left temporal lobe?

i'm curious to see what if any changes you may have noticed about yourself as time goes on. thanks.


Answers:

Mine's down in my pons not in the temporal lobe but in general the answer should be "none at all, unless it bleeds". Some do, some don't so although lots of people have cavernomas they're generally asymptomatic. It's only since MRI was invented that they're being detected when they're sitting there doing nothing.

You can find out lots more about cavernomas through the web site of the Angioma Alliance[1] - or if you're in the UK we have our own web site[2].

PS: my cavernoma did bleed but I'm still here. You can read about that on my own web site[3].




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