Does climate really affect/help your fibromyalgia? Also, exercise..?!
Question: Does climate really affect/help your fibromyalgia!? Also, exercise!.!.!?
I'm 23 years old, and have fibromyalgia!. I got the disability at 15, but wasn't formally diagnosed until 17 due to a number of puzzled doctors and misdiagnoses before finally seeing a Rheumatologist!.
I was bedridden for about a year and a half, because upon receiving one of my misdiagnoses, I was placed in a wheelchair!. Because of this my muscles became atrophied and I became bedridden because the weakness and lack of activity complicated the fibromyalgia!.
I became sick of being bedridden as a teenager and pushed myself beyond belief!. I actually manage pretty well now -- I work full time (it's hard, but I manage!) and even ride on an exercise bike every day to try to maintain my strength!.
I currently live in New Hampshire -- HORRIBLE climate!. It switches temperature all the time, some months going from 20 to 60 in one day! Those are usually my worst days where I feel the most pain -- either when it's really, really cold or when the weather fluctuates too much!.
We'd like to relocate, either to Nevada or North Carolina, thinking that the more balanced climates may help my disability!. Plus, we hate the snow and cold!. :) So, how does climate affect your fibro!?
ALSO, as a side note -- what types of exercise do you find you can do that best help you!?Www@Answer-Health@Com
I was bedridden for about a year and a half, because upon receiving one of my misdiagnoses, I was placed in a wheelchair!. Because of this my muscles became atrophied and I became bedridden because the weakness and lack of activity complicated the fibromyalgia!.
I became sick of being bedridden as a teenager and pushed myself beyond belief!. I actually manage pretty well now -- I work full time (it's hard, but I manage!) and even ride on an exercise bike every day to try to maintain my strength!.
I currently live in New Hampshire -- HORRIBLE climate!. It switches temperature all the time, some months going from 20 to 60 in one day! Those are usually my worst days where I feel the most pain -- either when it's really, really cold or when the weather fluctuates too much!.
We'd like to relocate, either to Nevada or North Carolina, thinking that the more balanced climates may help my disability!. Plus, we hate the snow and cold!. :) So, how does climate affect your fibro!?
ALSO, as a side note -- what types of exercise do you find you can do that best help you!?Www@Answer-Health@Com
Answers:
Gotta say, reading these group posts makes me a little more grateful!. I've been bemoaning that this disease has destroyed me in my prime (I'm 38, suffering 7 years, disabled for 2 1/2) but I can't imagine having had this disease in my teens!. Kudos for your courage!.
I've found swimming helps (the lack of gravity) but I hate the bathing suit (can anyone scream beached white whale!?)!. I used to love to dance, so ballet stretches and Pilate's movements sometimes help!. However, I have to feel really good and be prepared to go down for days in case I over do!.
I live in South Florida and can't imagine being in cold weather!. The sinus attacks are bad enough (ice pick headaches), but I'll take a hurricane over constant cold any day!.
The only medication I take is oxycontin (yeah I know, I know) because I lack the medical, financial and family support system to really explore other options!. It's probably only a matter of time before I'm truly homeless!. I've tried just about every chemical out there!. It's ironic because I never did drugs, or even took OTC meds, so being encumbered by pills really ticks me off!.
What I really want to confirm is whether this is an electrical problem in my brain or truly immunological!? I'm one of those people who has a panderfectly clear (and until now perfectly unremarkable) health record, I can pinpoint the progression of my exposure to viral infections that brought me down!. I think it would be easier if I know where to start fighting!. Is anyone doing any legitimate research!? (And, no, I don't mean that pretty web page by Lyrica!.) I'd love to offer my body up for research (no one else wants it) but the stuff I've seen offered has been quack stuff!.
Anyway thanks for listening!. Best of luck to you - wish I had your positive attitude!.Www@Answer-Health@Com
I've found swimming helps (the lack of gravity) but I hate the bathing suit (can anyone scream beached white whale!?)!. I used to love to dance, so ballet stretches and Pilate's movements sometimes help!. However, I have to feel really good and be prepared to go down for days in case I over do!.
I live in South Florida and can't imagine being in cold weather!. The sinus attacks are bad enough (ice pick headaches), but I'll take a hurricane over constant cold any day!.
The only medication I take is oxycontin (yeah I know, I know) because I lack the medical, financial and family support system to really explore other options!. It's probably only a matter of time before I'm truly homeless!. I've tried just about every chemical out there!. It's ironic because I never did drugs, or even took OTC meds, so being encumbered by pills really ticks me off!.
What I really want to confirm is whether this is an electrical problem in my brain or truly immunological!? I'm one of those people who has a panderfectly clear (and until now perfectly unremarkable) health record, I can pinpoint the progression of my exposure to viral infections that brought me down!. I think it would be easier if I know where to start fighting!. Is anyone doing any legitimate research!? (And, no, I don't mean that pretty web page by Lyrica!.) I'd love to offer my body up for research (no one else wants it) but the stuff I've seen offered has been quack stuff!.
Anyway thanks for listening!. Best of luck to you - wish I had your positive attitude!.Www@Answer-Health@Com