Regarding diagnosis of Chronic Fatigue Syndrome?!


Question:

Regarding diagnosis of Chronic Fatigue Syndrome?

For the past few years I've experienced some serious fatigue and lightheadedness among other symptoms. I took off the last few months from work to try and find a diagnosis and treatment for my problem. I've been to about 20 doctor's appointments and I still have no diagnosis. I've been to a cardiologist, neurologist, endocrinologist, sleep specialist and a gastrointenologist. I am scheduled to see a psychiatrist next week. While I think it will be helpful I am convinced the underlying cause of my symptoms is not psychological, even though psycological factors certainly exacerbate the problem.

My primary care doctor is sick of me by now and she has nothing more to offer me. Most doctor's I seem to imply that my symptoms are caused by psychological factors. This is one of the most difficult times of my life.

Based on some internet research I believe I may have CFS. Can anyone out there with CFS empathize with me on the difficult process of getting diagnosed?


Answers:

Yes, I can empathize on the long process of getting diagnosed. There are numerous subtypes of ME-CFS.
Don't think that what helps one person will help you b/c we are all different. It's quite a hellish experience trying to get a diagnosis and finding treatment. I also have FMS, MCS and POTS as well. I was having consistent severe reactions to traditional medicine and so I had to find non-traditional treatments.

I have severe CFS and I still suffer with severe, debilitating fatigue as well as many other symptoms. However, my symptoms were very severe 3 years ago...10+ pain, not getting sleep, severe cognitive issues, mostly bedridden and housebound, severe allergies, etc.

I was getting worse by the week UNTIL l I tried some alternative therapies: NAET (allergy elimination technique), dealing with various stealth infections (whether through traditional antibiotics & antivirals or through Dr. Overman's herbals), nutritional supplementation (varies for each person...still trying to figure out but have found many helpful things for me), slowly working at detoxification (I want to eventually try a methylation block protocol that a doctor developed...find info on it at the message board for CFS at chronicfatiguesupport.com), and working at resolving all the negative emotions that come with having a debilitating chronic illness.

I think that doing research and speaking to others who have already tried both traditional and non-traditional approaches is your best best.

The best place I've found is chronicfatiguesupport.com. There is a wealth of valid and reliable knowledge on this site. You can post questions and do searches on the message boards as well. it's an unbelievable site. You have to go there!!! I've listed a bunch of resources for you to check out as well as a recent News Herald article that tells my story with ME-CFS.




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