I have recently got out of the hospital with not so good news...help?!?!

I have recently got out of the hospital with not so good news...help?!?

Okay, I got out of the hospital recently. I found out that I have blood clots in my lungs. the doctors put me on coumadin which is a blood thinner. I also found out that I have Lupus Anti-coagulant which means that I have a higher chance of getting clots because it is genetic. Does anyone out there know anyone on this medacine? I'm still young and cant do things I used to, how do you cope? I know things can be worse, I just wanna talk to someone who knows a bit of what I'm going through.

I know exactly what you are going thru. I'm 37 years old and I was diagnosed when I was 20. I got a blood clot in my leg and the doc did not understand why I had a clot in my leg. They asked if I had bumped my leg or did something to it and I told them no. Then after I got out of the hospital for my DVT, I was sent to a Rheumatologist. At this time, this is when I got the horrible news that I had Lupus and Antiphosphilipid Syndrome which is the blood clotting disorder. I was devasted but fortunatly I had minor flare ups in my joints. Then I got pregnant with my first child at age 26 and I felt so good while I was pregnant. They had me take two shots daily of Heprin (blood thinner) in my stomach during the whole pregnancy. I was able to breastfeed after my pregnancy also. So all was good and then I got prego again in 98 and had my second child. Wow, what a miracle! The docs did not expect me to carry either baby to 40 weeks but I did and worked full time also. After my second baby though, I started to slow down and the Lupus was really hurting me more and more and making me soooooo tired. I struggled until the year 2000 when I had my first full body flareup where I could not even move my body and had to be put in the hospital. After that it has been rough since then. I worked full time untill 2005 when I had a subdural hematoma in my brain because of the blood thinners. Don't get me wrong, all this sounds scarey but you have to look around you and see that things happen all the time to people. People are diagnosed with something everyday and no one, No One in this world is guaranteed tomorrow. Just cause you have a disease does not mean you will die tomorrow or the next day. Some people don't even have a problem and get in a car wreck and die that day. Nobody knows what will happen in the future but to me, GOD has it all written out already and there is nothing that any of us can do about it. I do get depressed, scared where I can't sleep at night just looking at my kids wondering how they would do without me. It's just a strength that you really have to find deep inside you to help you thru those bad days. Like right now, I'm up at 12:07 at night and can't sleep because I going thru one of those depression things where you feel so scared and so out of control because you feel like you have no control of this stupid disease and it is so scarey. But you have to talk to yourself or someone to help calm your nerves down. I'm real scared, real scared about what news I'm going to hear next or where its attacking me next. But, the more I worry, the worst it hurts me because stress will trigger a flare so I try things to help calm my nerves. My friend introduced me to smoke some MJ to help calm my nerves and it does plus its supposed to be a immunsuppressive drug to slow down the antibodies.
I have found that cutting out beef helps reduce my flare-up and helps my stomach also. Do you know what your sed rate is?

I hope this helps and if you need to talk at all, please do not hesitate to contact me. I truely understand.
Nettie