Baby with chd or hlhs?!


Question: Baby with chd or hlhs?
I have a friend who has a baby that's about 15 months old and he has heart problems, he has problems with eating and throws up his food and he is extremely constipated from his meds. The doctor told her today if he don't start gaining weight then he's going to have to have a feeding tube. But they won't do anything about the vomiting or anything? What are some softer foods that she could feed him to help him gain weight so he don't have to have a feeding tube? Please be serious and no smart a** comments. Thanks so much

Answers:

I dont have any advice other than to say im sorry about the HLHS. CHD babies are the best, but the life is hard. I have some suggestions though, http://simmonsfamilyupdate.blogspot.com/… that is a blog for a boy that i believe has HLHS or some sort of severe CHD. he has a feeding tube but his parents seem to know a lot about feeding issues so maybe your friend could get in contact with them. Another suggestion is to go to this site --> http://community.babycenter.com/groups/a… its a group for babies with heart problems, you have to sign up to ask questions but its free and very helpful because those women(and men) have been through it and know a TON there are quite a few parents on there who have kids with HLHS. Also you could search facebook for congenital heart disease groups and join one of those and talk to those parents. i think those options are your best bet at getting an answer on the internet because those parents have a lot of experience.

Good luck!!

17 years old born with 4 heart problems--aortic stenosis, aortic regurgitation, bicuspid aortic valve and an enlarged aorta.



just about anything can be pureed in a blender or food processor
intake of water and should be upped also




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