Baby with chd or hlhs?!
Question: Baby with chd or hlhs?
Answers:
I dont have any advice other than to say im sorry about the HLHS. CHD babies are the best, but the life is hard. I have some suggestions though, http://simmonsfamilyupdate.blogspot.com/… that is a blog for a boy that i believe has HLHS or some sort of severe CHD. he has a feeding tube but his parents seem to know a lot about feeding issues so maybe your friend could get in contact with them. Another suggestion is to go to this site --> http://community.babycenter.com/groups/a… its a group for babies with heart problems, you have to sign up to ask questions but its free and very helpful because those women(and men) have been through it and know a TON there are quite a few parents on there who have kids with HLHS. Also you could search facebook for congenital heart disease groups and join one of those and talk to those parents. i think those options are your best bet at getting an answer on the internet because those parents have a lot of experience.
Good luck!!
17 years old born with 4 heart problems--aortic stenosis, aortic regurgitation, bicuspid aortic valve and an enlarged aorta.
just about anything can be pureed in a blender or food processor
intake of water and should be upped also