Does anyone have any other ideas why i could have this pain? Or what i should do!


Question:

Does anyone have any other ideas why i could have this pain? Or what i should do? Or even what doctor to see?

I have had abdominal pain since I was 13, and I am now about to be 20. When i was 13, the doctors said the pain was due to ovarian cysts, and I was put on birth control. After they said they were gone, I quit going to the doctor until I was 18, but was always sensitive on my right lower side (even with kidney but in front not back). Well, I went back at 18, had to get a laparoscopy and was diagnosed with endometriosis. Pain went away for 2 months, then came back worse. I have been unable to take bc's since (mood issues). But have been assure my more then 1 doc that endometriosis is not the cause anymore. I have been in and out of the ER on morphine, the first few "diagnosis" was kidney infection/bladder infection..then I started having GI problems as well. After going to a GI doc, they wanted to do a colonoscopy, but I couldn't hold down the prep kit, and I haven't gone back yet. They put me on methscopolamine bromide (sp) and everything seemed good...

Additional Details

3 weeks ago
although I still had lower back and side pain after walking or swimming. Then I my ovaries quit working, and i was given a hormone pill, then ended back up in the ER for ruptured ovarian cyst. That was about 3 weeks ago, I have been on a new bc for a week, but my lower back continues to hurt as well as sharp pains in my side. I have my gallbladder,appenix,blah blah all of it checked, multiple blood work, multiple ultrasounds, pelvic and abdominal. I just have no idea what to do anymore, i dont want to be on pain med forever, and I have no idea where to turn anymore...it seems like no doctor gives a crap about me, and just act like im making everything up...I don't ask for pain med either. I just don't understand any of this anymore...

3 weeks ago
I am currently only on one med...the bc and I tried the chiropracter, and it made things worse..so...I don't feel comfy going back...


Answers:

I'm sorry you still have the pain, if it's any consolation, many women with endo go through the same thing. Do you know how they removed the endo during your lap? Here is the problem-most dr.'s are not knowledgable in endo when they perform a lap they usually laser the endo and/or do not remove it all-that is why most women will still have pain after having the surgery or any relief they do receive it short lived. Lasering the endo does not remove all of it. the amount of pain a person has does not correlate to how much endo you have, a person with very little can have extreme pain and someone with a lot can have no pain. So, the dr. could have removed 75% of all he found but the 25% left could very well be the cause of the pain. Plus, most obgyns know "textbook" endo-they do not recognize all of the various forms that endo can take-if that is the case the dr. could very well believe he removed it all but he could have missed some. I would guess that he did not/was not able to remove it all. True endo specialists excise endo and will keep you on the operating table until they have searched everywhere and removed every last bit-very hard for a dr. who does not specialize in endo b/c endo can grow in lots of places where it is difficult to remove or it's grown on vital organs that dr.'s are scared to remove it from. I would request your medical records from the lap, ask your dr. if he was able to remove it all-if he says no, then ask him, "so if the amount of pain is not relative to the amount of endo, and you were not able to remove it all, how is it not possible that it is still causing me pain?" It would be best for you to try to find a dr. that is a specialist though-no matter what his answer. As far as the colonoscopy thing-pretty common procedure for us with endo but I wouldn't worry a whole lot about that, a colonoscopy will only show endo that has grown through the intestinal wall, which is pretty rare. thats not to say that endo hasn't grown on the colon but a the procedure doesn't show endo that has not penetrated the colon all the way through. If you have a lot of symptoms of bowel endo though, such as pain in your rectum, constipation/diahhrea, pain with bowel movements and especially bleeding from your rectum, I would try to get through it. Don't let them tell you it's not endo related-google dr david redwine or dr. andrew cook-true specialists with great info on endo. And don't let them tell you that pregnancy or a hyst is a cure-there is no cure. Hope this helps!




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