Blisters mystery and no history? :(?!


Question: Blisters mystery and no history? :(?
Heres my story:
About two years ago at band camp i developed severe blisters all over my feet. They were bad in the summer and were usually okay in the winter. Last october I finally went to see a podiatrist. He basically spent five minutes with me walked in the room and said its athletes foot. He then prescribed me a topical anti fungal gel and told me to follow up in 6 weeks. It was the day before my follow up when i developed a bad infected blister on the sole of my left foot. I never made it to the appt. Instead i went to my doctor and she prescribed me bactrim. turns out my podiatrist wasn't working that day so i had to have an emergency visit with a different podiatrist. He basically took one look at my feet and said this is definitely not athletes foot and that it is some kind of bullosa and that it was a dermatological problem. He said to go to a dermatologist as soon as possible. two weeks later i was sitting in the dermatologists office and he basically clinically diagnosed me with epidermolysis bullosa weber-cockayne subtype. But i have no history of this in my family but he said it has to start somewhere. He said the best way to confirm this diagnosis would to do three skin biopsies on newly formed blisters on the top of my foot. I had to go to the hospital for this procedure. So two hours and three stitches later I was home with a throbbing foot. Three weeks later i finally got the results. The biopsies came back inconclusive so they basically couldn't find anything. My doctor said i show all the symptoms of this and that i have the classic story of how i started to develop these blisters. But basically now all my doctors are consulting with geneticists and EBS-WC specialist and to see what the next step would be. Right now they are thinking more biopsies and blood tests. What else could they do? Also if any of the other test show up negative, what in the world could this be? Im so frustrated and I just want to get on with my life and prevent these painful blisters. It has basically become a big case study at the hospital. Not to mention Im only 16. Thanks and sorry for the long explanation and story:/

Answers:

no offense but if the experts dont know what it is then why would you think yahoo answer would? im sorry about that though): but yeah my friend had this gross foot deseise and after they finally fixed it she still has scars on her feet. yuck. good luck though!




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