Can you give me some tips?!
Question: I have Osteogenesis Imperfecta Type I and II
I have broken my back 3 times L1-L5 and T6 all compression fractures. More than 80% of my time is spent in bed crying of pain even though I am taking Fentanyl 50 mcg per hour and Percocett 7.5/325 1 every 5 hours.
I'm constantly miserable. I can't seem to get comfortable and my doctor keeps me on the same meds. My marriage is falling apart. The pain is causing a MAJOR depression which not only hurts me but I see that it hurts my husband.
My New Years resolution was to get out of pain. What can I say to my doctor to get him to help me. He makes over $250 per visit yet I'm in the same condition as when he met me. Is comfort too much to ask?
I did ask for water therapy and keep being told it takes time to setup yet its now been 2 months. I'm miserable and so so sad that I only wish to escape this pain yet no one listens. Suicide has been a forethought but I love my husband so much. I just simply CAN NOT do it because of him.
Answers: I have Osteogenesis Imperfecta Type I and II
I have broken my back 3 times L1-L5 and T6 all compression fractures. More than 80% of my time is spent in bed crying of pain even though I am taking Fentanyl 50 mcg per hour and Percocett 7.5/325 1 every 5 hours.
I'm constantly miserable. I can't seem to get comfortable and my doctor keeps me on the same meds. My marriage is falling apart. The pain is causing a MAJOR depression which not only hurts me but I see that it hurts my husband.
My New Years resolution was to get out of pain. What can I say to my doctor to get him to help me. He makes over $250 per visit yet I'm in the same condition as when he met me. Is comfort too much to ask?
I did ask for water therapy and keep being told it takes time to setup yet its now been 2 months. I'm miserable and so so sad that I only wish to escape this pain yet no one listens. Suicide has been a forethought but I love my husband so much. I just simply CAN NOT do it because of him.
First and foremost, I urge you to change doctors. I have had ONE fractured vertebra and I thought the pain was going to kill me. My family physician didn't have the results of my MRI back yet and just assumed I was faking the pain to get him to give me pain meds. The day I got the results I went to a neurosurgeon who took one look at my x-rays and didn't have even so much as one itty bitty problem giving me a prescription for 100 10 mg of Lortabs right then and there. Then a month or so later he gave me another script. I took them like they were aspirin! I have never been in such pain and I don't know how you live with it. FIND YOURSELF ANOTHER DOCTOR IMMEDIATELY and get some relief.
I'll keep you in my prayers. Good luck.
I work in the health care field. Did you ask your doctor to switch your pain meds? How long will he keep you on this type before trying another kind? You might want to ask for a Duragesic Patch a.k.a Fentanyl patch a.k.a Pain Patch. A patch that it is extended release, it is applied to your skin with pain meds in it, it is changed out every 72 hours, or you might want to try a Toradol or Stadol (anti-inflammatory)/ There are many pain meds on the market for your doctor to prescribe besides the ones you mentioned. Pain is "Subjective", your doctor can not tell you if you are having pain.
Repeated fractures of the same bone, deformity, or fractures that do not heal properly are all indications that surgery may be necessary. Metal rods may be inserted in the long bones of the arms and legs. Some rods are a fixed length and must be replaced as the child grows. Other rods are designed like telescopes so they can expand along with the bone growth. However, other complications may occur with telescoping rods. Do not hesitate to ask your orthopaedic surgeon about both options.
In many children with osteogenesis imperfecta, the number of times their bones fracture decreases significantly as they mature. However, osteogenesis imperfecta may become active again after menopause in women or after the age of 60 years in men.
I am surprised they do not have you on the Bisphosphonates, let alone they are not treating your depression.
I suggest you return to your Doc and explain to him that you are feeling suicidal and ASK to see a Psychiatrist, who will help you cope with your condition. Good Luck.