House bound please help?!


Question:

House bound please help?

i have got a desease its called distonia its causes my head an neck to lean to one side,i find it really difficult to even go to the shop some of the kids where i live they hang around the shop and they are really horrible they say horrible things,i do go town but i have to go with some one i know,i get alot of people staring at me,i just dont know what to do,i am on a couple of tablets like diazapam and muscle relaxens but they dont work,i have been tot he doctor many times and they say they cannot give me anything else,i am getting treatment shortly and i cant wait,i just feel like i am on my own at the moment and there is nobody out there that can understand how bad it is...please help


Answers:

Hi, sorry to hear your going through a bad time right now. People can be so cruel.

I just searched on the internet for any support groups and found this site:

www.dystoniasupport.org - hopefully someone there can offer you some support and will know what your going through.

As for practical help - either explain to friends and family how your feeling (although that's easier said than done sometimes) or call your local authority and ask for some support from the Occupational Therapy service who should be able to provide support with house chores and shopping.

Hope things improve soon and good luck with the treatment. x




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