Neurological Pain?!

Neurological Pain?

I have RSD/CRPS in my right leg and my pain has been pretty well under control until recently because my leads of my Spinal Cord Stimulator are scarring in and they are in the wrong place so they are stimulating my left leg instead of my right leg even though it is suppose to be in my right side they've figured that my spinal cord is twisted. I may have surgery to fix it this summer, but as of now we are trying to get new insurace and things so that has to wait a little bit. I'm not in the most pain that I've ever been, but because of the pain I"m loosing my appetite, and I feel so frustrated because of the pain. I'm 14. The doctors haven't been able to do much to help me, and all of their treatment options take forever to actually get moving on (I go to several doctors so it's not like the doctor is just slow or something- they just aren't sure what to do next) Does anybody have any suggestions of what I can do at home to help deal with the pain?

I wish there was something I could say to help. I know your frustration, I can fully understand. As you know since moving I too am trying to get insurance, but its hard because I have a prexisting condition. Meanwhile the purple is getting worse again, and the pain seems to be spreading. Unfortunatly there really isn't much you can do to help with the pain. I'd suggest medicine, but as you know it dont help much. Do massages help any? My doctor suggested Vitamin E oil , putting it all over the high pain areas and then putting rubbing when u can. You should put a hand towel or wash cloth into the microwave oven for 30 seconds, be careful not to burn yourself. Put that towel over the Oiled areas do not leave on till gets cold. Keeping it warm and reapplying often can help with pain some. I haven't tried it yet, so I dont know. Also hot tubs, or just plain warm baths have always been at least somewhat soothing for me. If you have any pain management tricks of you own you want to share with me, please do. I myself am struggling with the pain lately. Its getting harder and harder to keep mobilized. I have a question for you as well. Does the discoloration come and go. Lately my right arm has been hurting badly, and sometimes it gets puffy and purple just like my leg, but as quickly as it comes it goes away. I usually only have it in my legs, but could this mean its spreading? Thanks, and Good LucK.