Is there anything i can do about my retinitis pigmentosa?!


Question: im 16 years old and i was born with retintis pigmentosa. the disease gives my left eye an inward crossed look. i can see perfectly fine out of my right eye, but when i close my right eye i can only see things as if i were looking at them with my peripheral vision. is there a way to treat the disease besides dosage of vitamin A? and is there a way to fix the crossed look?


i can see perfectly fine even without glasses with both eyes open. so im more concerned about the strabismus part


Answers: im 16 years old and i was born with retintis pigmentosa. the disease gives my left eye an inward crossed look. i can see perfectly fine out of my right eye, but when i close my right eye i can only see things as if i were looking at them with my peripheral vision. is there a way to treat the disease besides dosage of vitamin A? and is there a way to fix the crossed look?


i can see perfectly fine even without glasses with both eyes open. so im more concerned about the strabismus part

The strabismus, turn, is unlikely to be anything directly to do with the Retinitis Pigmentosa.
An eye with poor vison is likely to turn, and an eye with a turn is likely to end up with poor central vision. (whichever one comes first!) This is independent of RP, unless the RP caused the poor central vision in the left eye, which would be very unusual.
You may or may not be too old for vision therapy in your poorer eye, if that hasn't already been tried, (if it hasn't it might be at least worth considering), but that wouldn't often affect the angle of the eye. That would normally require surgery, but there are definite exceptions.
If you are longsighted, and you can be at your age without seeing badly or having tired eyes, wearing an appropriate +ve powered prescription in glasses would hold the left eye straighter (this would also work in contacts). *If* there is longsight there, not otherwise.

As far as the Retinitis Pigmentosa goes, no, there is no other active treatment except for the carefully dosed use of vitamin A.

Optometrist, retired.





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