Im going blind, what should I do?!


Question: Im going blind, what should I do?
I'm not blind yet, but I will be in I say a year or two. I have whats called Leber's Hereditary Optic Neuropathy, or so my doctors think. The test came back negative, but there is a fairly wide margin of an error rate. Its a disease you cant do anything about.

So I dont have a documented disease and I still have a license for now. What kind of arrangements should I start making in my life?

Answers:

My recommendation would be for you to start doing some volunteer work at an agency for the blind in your area. Start meeting blind people and start learning how they live life. Talk to them, try to experience a bit of what they experience. Immerse yourself in the blind community. Familiarity works wonders for easing fear. Try to learn braille. Find a mobility trainer. Ask him (or her) if you can tag along with one of his clients. Or, better yet, ask if you could get some mobility training.

It's all about becoming familiar and comfortable around blind people and the 'blind lifestyle' so that when the day comes when you're forced to be a part of the blind community you'll be entering it with far less shock and far greater knowledge and experience. It will make the transition many, many times more helpful.

Good luck!



Make a list of everything you want to actually see e.g mountains, the great barrier reef etc. You will have your own list I'm just throwing mine in. Try and see those if finance and time allow. Look at getting training in a job that you could continue after you are blind . If you get experienced in some jobs then you may be able to manage with some aids if the worst comes to teh worst.

You may have to make choices about what you do to fulfill your dreams before you go blind against getting some sort of financial security for the worst. How you make that balance is up to you, but its something you need to think about. Try and see if there are support groups you can contact. People who have expereinced this will have points to make that will be useful and we may not think of.

Lastly having prepared for teh worst don't forget to live in the day. Incredibly cliched that I know but it is important although difficult to do.



I've known of optic neuropathy being addressed by giving the body specific nutrients that it needs to fix the damage.

You can read about this here www.realfoodnutrients.com/neuropathy/hom… It was first developed for diabetic neuropathy, but the company has had the supplements for 6 years and they've found that no matter what the cause or what nerve is affected, the body will use the nutrients to repair the nerve damage.



Man, that's a tough question. First of all, you seem to be facing it very matter-of-factly and that's a great attitude to have. If it were me, I'd try to save my money and go to my top dream destination so I'd get a chance to really experience it, just in case the doctors are correct. Take it day by day and drink in everything you see. Everyone really should do this, because you never know what tomorrow's going to bring anyway. Good luck, God bless, and I hope the doctors are wrong!



This is a big question with a big answer. Ask your eye doctor to refer you to a social worker at a low vision clinic who will assist you with arranging your life.



Pray.



first of all just pray not to be blind... when you wake up you should have a hope that every thing is gonna be perfect...no matter what those doctors say... believe in miracles and believe in your words when you say you eyes will be ok !! have you ever heard smth like when a person deeply believes that he can move the mountain he can do it !!!! you have to be utterly like that.. dont think about any arrangements yet... be morally strong...




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