I have discord lupus...anyone else has it and how are you treating it?!


Question: Its in my hear, ear, on my face and spreading to my chest and back. I am on medication but its just spreading. I avoid the sunlight as much as possible yet it burns and itches. They are light read and 1st and once the medication goes on ther darken. Any advice would be appreciated. Thanks.


Answers: Its in my hear, ear, on my face and spreading to my chest and back. I am on medication but its just spreading. I avoid the sunlight as much as possible yet it burns and itches. They are light read and 1st and once the medication goes on ther darken. Any advice would be appreciated. Thanks.

Hi, we have many friends that have cutaneous lupus and I have SLE. I'm sorry you're suffering so much.

My friends use their meds and SPF clothing (shirts, jackets, hats, glasses, etc.) but I know they still suffer. I think every litttle bit helps, though.

Has your Rheum offered any other advice on soothing baths, showers, etc?

I know about the itching and the side effects and I'm very sorry. Please make sure your doctor knows about this as maybe changing your medicines may help.

God Bless.

Please see Google search for more details and images on Discoid lupus erythematosus,





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