Update on cleft lip /pallet?!
Question: Was very interrested in responce of Floyd S....... gave futher info in regards to my son in the first question ask.Does anyone have a child born with cleft lip/pallet? My son recieves PT, (2)ST also Pool Therapy and still doesn't walk or talk.They tell me that it is related to his devolpmental delays I don't know
Answers: Was very interrested in responce of Floyd S....... gave futher info in regards to my son in the first question ask.Does anyone have a child born with cleft lip/pallet? My son recieves PT, (2)ST also Pool Therapy and still doesn't walk or talk.They tell me that it is related to his devolpmental delays I don't know
My fiancee's daughter is three going to be 4 in April... she was born with a complete cleft pallet..has had two corrective operations, receives PT twice a week, Speech 5 days a week, walks, and can somewhat talk but has about 15 ledgible words.. She has a little bit of delay but due mostly to the hearing problems and the fact she spent her first year in the hospital due to other problems...
oh and shes currently being processed for OT because she still mirrors with her hands which she should have stopped doing when she was one.
My daughter is 2 1/2 born with a unilateral cleft lip and palate..She was pretty much behind in everything..Sitting up, babbling, walking..She was in speech until we took her out for awhile because of her ears..She is having surgery on April 22nd to clean them and put new tubes in..Does your little one have tubes in at all? Has he had a lot of ear infections or fluid that is built up? I know the ears can cause a lot of problems with balance and speech..Have you tried genetic counseling? Are there any syndromes that they might be looking at that could be related to his delay? With Ella, I can understand some of what she says but she isn't even close to where she should be..I think I only understand her because I'm with her 24/7..My husband still asks me what she's trying to say..What has your cleft team said about what is going on? ~added~ The eustatian (sp?) tubes are usually affected..Short, mishaped..It can lead to problems with balance..Also, there is a problem with fluid that gets trapped in the ear..It would sound to them like they are underwater, or a cotton ball, soaked in vasoline stuffed in their little ears..My daughter's fell out and that's why we had to stop speech until they are replaced..You can tell when she has a lot of fluid in there or they are out..She gets clutsy, trips a lot, and her speech takes a turn for the worst..I guess I'm surprised your little one doesn't have tubes in..Most cleft kiddos do..Check with your team or an ENT..Hopefully this helps out a bit!